Chronic Paradoxes: A Systematic Review of Qualitative Family Perspectives on Living with Congenital Heart Defects

Research output: Contribution to journalJournal articlepeer-review

Standard

Chronic Paradoxes : A Systematic Review of Qualitative Family Perspectives on Living with Congenital Heart Defects. / Svensson, Marie Kofod; Wahlberg, Ayo; Gislasson, Gunnar Hilmar.

In: Qualitative Health Research, Vol. 30, No. 1, 2020, p. 119-132.

Research output: Contribution to journalJournal articlepeer-review

Harvard

Svensson, MK, Wahlberg, A & Gislasson, GH 2020, 'Chronic Paradoxes: A Systematic Review of Qualitative Family Perspectives on Living with Congenital Heart Defects', Qualitative Health Research, vol. 30, no. 1, pp. 119-132. https://doi.org/10.1177/1049732319869909

APA

Svensson, M. K., Wahlberg, A., & Gislasson, G. H. (2020). Chronic Paradoxes: A Systematic Review of Qualitative Family Perspectives on Living with Congenital Heart Defects. Qualitative Health Research, 30(1), 119-132. https://doi.org/10.1177/1049732319869909

Vancouver

Svensson MK, Wahlberg A, Gislasson GH. Chronic Paradoxes: A Systematic Review of Qualitative Family Perspectives on Living with Congenital Heart Defects. Qualitative Health Research. 2020;30(1):119-132. https://doi.org/10.1177/1049732319869909

Author

Svensson, Marie Kofod ; Wahlberg, Ayo ; Gislasson, Gunnar Hilmar. / Chronic Paradoxes : A Systematic Review of Qualitative Family Perspectives on Living with Congenital Heart Defects. In: Qualitative Health Research. 2020 ; Vol. 30, No. 1. pp. 119-132.

Bibtex

@article{e064fa81e07746da987e58f8bb5ec88b,
title = "Chronic Paradoxes: A Systematic Review of Qualitative Family Perspectives on Living with Congenital Heart Defects",
abstract = "There have been substantial advances in the diagnostics and treatment of congenital heart defects (CHDs) in recent decades, and this has improved survival significantly. Consequently, there is a growing interest in how CHDs affect the daily lives of children and youth. We examine life with CHDs as a particular kind of living from the perspectives of both children and youth with CHDs and their families through a systematic review of existing qualitative research. Based on a meta-ethnographic analysis of 20 articles (identified through PubMed, EMBASE, EBSCOhost, PSYCHinfo, Scopus, and Web of Science from January 7 to 12, 2016), we argue that living with CHDs is characterized by chronic paradoxes arising out of the transitions, normalities, and futures that families have to navigate.",
keywords = "Faculty of Social Sciences, congenital heart defects, chronic illness, chronic paradoxes, families, children's health, meta-ethnography, qualitative research, systematic review",
author = "Svensson, {Marie Kofod} and Ayo Wahlberg and Gislasson, {Gunnar Hilmar}",
year = "2020",
doi = "10.1177/1049732319869909",
language = "English",
volume = "30",
pages = "119--132",
journal = "Qualitative Health Research",
issn = "1049-7323",
publisher = "SAGE Publications",
number = "1",

}

RIS

TY - JOUR

T1 - Chronic Paradoxes

T2 - A Systematic Review of Qualitative Family Perspectives on Living with Congenital Heart Defects

AU - Svensson, Marie Kofod

AU - Wahlberg, Ayo

AU - Gislasson, Gunnar Hilmar

PY - 2020

Y1 - 2020

N2 - There have been substantial advances in the diagnostics and treatment of congenital heart defects (CHDs) in recent decades, and this has improved survival significantly. Consequently, there is a growing interest in how CHDs affect the daily lives of children and youth. We examine life with CHDs as a particular kind of living from the perspectives of both children and youth with CHDs and their families through a systematic review of existing qualitative research. Based on a meta-ethnographic analysis of 20 articles (identified through PubMed, EMBASE, EBSCOhost, PSYCHinfo, Scopus, and Web of Science from January 7 to 12, 2016), we argue that living with CHDs is characterized by chronic paradoxes arising out of the transitions, normalities, and futures that families have to navigate.

AB - There have been substantial advances in the diagnostics and treatment of congenital heart defects (CHDs) in recent decades, and this has improved survival significantly. Consequently, there is a growing interest in how CHDs affect the daily lives of children and youth. We examine life with CHDs as a particular kind of living from the perspectives of both children and youth with CHDs and their families through a systematic review of existing qualitative research. Based on a meta-ethnographic analysis of 20 articles (identified through PubMed, EMBASE, EBSCOhost, PSYCHinfo, Scopus, and Web of Science from January 7 to 12, 2016), we argue that living with CHDs is characterized by chronic paradoxes arising out of the transitions, normalities, and futures that families have to navigate.

KW - Faculty of Social Sciences

KW - congenital heart defects

KW - chronic illness

KW - chronic paradoxes

KW - families

KW - children's health

KW - meta-ethnography

KW - qualitative research

KW - systematic review

U2 - 10.1177/1049732319869909

DO - 10.1177/1049732319869909

M3 - Journal article

C2 - 31526075

VL - 30

SP - 119

EP - 132

JO - Qualitative Health Research

JF - Qualitative Health Research

SN - 1049-7323

IS - 1

ER -

ID: 228148673